Elder Care Internet Resources

 

Alzheimer's Disease

National Alzheimer's Association

Information and educational materials in English, Spanish and Korean.

Alzheimer's Disease Education and Referral Center
This website provides information about Alzheimer's disease and related disorders. The ADEAR Center is a service of the National Institute on Aging (NIA). The NIA is one of the National Institute of Health under the US Dept of Health and Human Services.

Caregiver Guide

Tips for Caregivers of people with Alzheimer's Disease, from the National Institute on Aging

MayoClinic.com
- Alzheimer's caregiving: Balancing your needs with those of your loved one
- Overview of Alzheimer's disease

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Caregiver Resources

Family Caregiver Alliance for memory loss and brain injury. Extensive literature, publications list, newsletter. Services - including: case management services, respite. Retreats for caregivers. Publishes "Directory of California Support Groups for Caregivers of Brain-Impaired Adults," Statewide clearinghouse information services.

690 Market Street, Suite 600
San Francisco, 94101.
Phone: (415) 434-3388.
E-mail: info@caregiver.org

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http://www.aging-parents-and-elder-care.com
Articles, comprehensive checklists, and links to key resources ... designed to make it easier for family caregivers to quickly find the information they need ... and avoid overlooking something important in the care of their loved one."

Caregiver Network, Inc. (CNI), the first of its kind in Canada, is a resource center created to help caregivers of the elderly and ill. Our goal is to make caregivers' lives easier by providing information on the Internet and in our newsletter, education through the 13-part TV/video series "Caregiving with June Callwood", the Canadian Aging and Caregiving Resource Guide and personal assistance and support through our seminar series, Care Management Consulting Service, the Caregiver Club and Care Across the Border.

HELP a community-funded, non-profit (charitable) information resource that assists older adults and their caring family and friends by providing information, planning and problem-solving services, on government program, legal healthcare-related issues that specially impact older adults.

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The Gold Violin
This is a great site that offers dignified, high quality gifts and tools that seniors can really use. It was recommended by Susan Stamberg on NPR as a source of handy items with good design, high quality construction, and made with respect for the dignity of elders. One look at the choices of designer canes, the fancy pill boxes, or the talking watches and you will see many items your elders just "have to have."

Today's Caregiver Magazine
This Magazine has general information on caregiving and caregivers. There are several different features from the current magazine on topics in caregiving and an archives of past articles.

bigtreemurphy.com
A wonderful site for caregivers of Alzheimer's patients. Beverly Murphy is a rehab counselor who retired to take care of her husband when he was diagnosed with Alzheimer's. She has organized this site with love, good experience, and good attention to detail. This site has plenty of good advice for caregivers on the difficult issues (incontinence), on how to develop a supportive living environment, and lots of good words of emotional support. A heartwarming site to visit.

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Alzheimers Caregiving Tips:

Children of Aging Parents
Children of Aging Parents is nonprofit charitable organization whose mission is to assist the nation's nearly 23 million caregivers of the elderly with reliable information, referrals and support, and to heighten public awareness that the health of their family caregivers is essential to ensure quality care of the nation's growing elderly population.

National Alliance for Caregiving (NAC)
National Alliance for Caregiving, A National Resource on Caregiving, NAC is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregiving.

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Disorganization, Clutter and Hoarding

Children of Hoarders

National Association of Professional Organizers

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End of Life Resources

National Hospice and Palliative Care Organization
On this website you can locate a hospice organization anywhere in the country and obtain hospice/consumer information. Toll free phone is (800) 646-6460.

Visiting Nurse Association & Hospice of Northern California
Home care as well as hospice services including prescription coordination, supplies and equipment, skilled nursing and support services, caregiving training. Located at 1900 Powell Street, Suite 300, Emeryville, 94608.

American Hospice Organization

On Our Own Terms: Bill Moyers on Dying

Hospice benefits from Medicare

Find a hospice in your area

Home Care Guide for Advanced Cancer/American College of Physicians

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Geriatric Case Manager

National Association of Professional Geriatric Care Managers
How a geriatric case manager can be helpful to you; how to find a local geriatric case manager (database).

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Grief and Loss Resources

Sutter VNA and Hospice
Bereavement Program designed to serve people experiencing a significant loss. They offers a safe and compassionate environment for you to express your thoughts and feelings about your loved one who has died. The local offices offer a variety of services to bereaved individuals including information and referral as well as individual and group support.

On Our Own Terms: Bill Moyers on dying

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Health/Disease

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Consumer Guide:
How to research a medical topic online

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Reputable, National Health Related Websites:

www.healthfinder.gov
Healthfinder, sponsored by the U.S. Department of Health and Human Services, is a gateway to more than 1,800 agencies and organizations. Using a health gateway is often the best first step in a search. Healthfinder will direct you to preselected, targeted site's unlike general search engines that do not always produce relevant results. If you're a novice Web surfer, explore the sites's databases and guides to common health matters, and the hot topics in the Health News section.

www.medlineplus.gov
The National Library of Medicine, the world's largest medical library, developed this site, where you can access: information about more than 400 diseases and conditions; a guide to pharmaceutical drugs; links to National Institutes of Health clearing houses', and other helpful resources.

www.cdc.gov
Stop here for news about threatening diseases, traveler's health, immunizations, bicycle safety, dog bites, food-borne illnesses, AIDS, sexually transmitted infections, and more. M.J. Toooey, deputy directory of the Health Sciences/Human Services Library at the University of Maryland, enjoys the Hoaxes and Rumors sections, which debunks myths and corrects misinformation.

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www.intelihealth.com
The Harvard School of Medicine stores an array of carefully reviewed, reliable materials here for all to see. For example, search for information on "stroke" and you will receive basic fact sheets, numerous feature articles, news reports and a diary to help keep track of your blood pressure. Two site programs can be especially useful. Symptom Scout asks questions about symptoms and offers clues for diagnosis. Topicdoc searches MEDLINE, which has a database of 11 million articles, to target the most promising studies. The University of Pennsylvania School of Dental Medicine also oversees a large body of material about dental health and peiodontal disease.

www.mayoclinic.com
Click on this site, affiliate with the well-known Mayo Clinic, and you will feel at ease with the organized layout. Check full in-depth articles, and the editorial content also makes you feel secure. The site offers an index of diseases listed A-Z, 11 Condition Centers (Alzheimer's for example), and eight Healthy Living Centers (such as Women's Health). If you're faced with various medical tests and treatments, consult the Helath Decisions Guide section, which walks you through options. Do note, however, that the slant on informations is potentially limiting, since Mayo Clinic specialists provide most of the content.

www.medem.com
The American Medical Association, along with six other physician speciality groups, founded this site. Other specialty groups, founded this site. Other specialty groups and state medical societies now contribute information. You'll find straightforward, peer-reviewed articles on common ailments. However, the library's rare conditions section may disappoint. "The library has good, credible information, but it's not research-oriented," says M.J. Tooey. "If I were interested in lung cancer, I'd get an overview here, then go to a cancer-specific site to answer more complex questions".

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www.webmd.com
WebMD is part of an ambitious project by a national health-care company to link patients, physicians, hospitals, and health insurers in an electronic health network. It has experienced cutbacks but remains heavily used. The Disease and Conditions section helps you zero in on a specific health problem. Search topics by three different interests: Health and Wellness, New Diagnoses, and Living with Illness. Keep your eyes wide open when reading "sponsored" sections, since commercial pressures may slant information.

www.4women.gov
Part health encyclopedia, part women's advocate, this National Women's Health Information Center site draws on thousands of publications from a federal clearinghouse. It also has valuable special-category sections, such as minority health, women with disabilities, and a roundup of men's health materials.

www.mentalhelp.net
This comprehensive guide offers more than 40 Issues and Disorders Centers and more than 25 Information Centers (such as Child and Adolescent Development, and Marriage and Family Therapy). Other related sites: National Mental Health Association(www.nmha.org), American Psychological Association(www.apa.org), and National Institute of Mental Health (www.nimh.nih.gov).

A network of medical librarians can assist you with your questions about medical and health Web sites, says Jean Shipman, secretary of the Medical Library Association Board, and director of the Tompkins McCaw Library, Virginia Commonwealth University. She suggests contacting the National Library of Medicine at 800/338-7657 or www.nnlm.gov

AgeLine Database from AARP
Books and articles about life at 50+

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ALS:

When a Loved One Has ALS: A Caregiver's Guide

ALS(Lou Gehrig's Disease)

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Arthritis:

Arthritis Foundation
Information, resources, online community

National Institute of Arthritis and Musculoskeletal and Skin Diseases

CDC Website on Arthritis

NOAH Website on Arthritis

Arthritis/ John Hopkins Hospital

The Arthritis Guide

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Cancer:

Moffitt Cancer Center
Patient Information, Research, Helpful links

The American Cancer Society
Information and resources. Input your zipcode and get resources in the area you need services in. The Alameda County Chapter: 1710 Webster Street, Oakland, Ca (510 832-7012) hours: M-F 9 a.m. to 5 p.m.

Women's Cancer Resource Center
Services include free therapy, information and referral hotline, legal services, resource library, peer support groups, in-home support services. Housed at 5741 Telegraph Avenue, Oakland 94609. (510) 420-7900 (for TTY call (510) 548-9288); Spanish speaking callers use (510) 548-9286 ext 309. e-mail: info@wcrc.org

Cancer Net
Oncologist-approved cancer information from the American Society of Clinical Oncology.

National Cancer Institute

National Alliance of Breast Cancer Organizations

National Ovarian Cancer Coalition

Medline Information on Lung Cancer From the National Library of Medicine

Abramson Cancer Center of the University of Pennsylvania

Alliance for Lung Cancer Advocacy

Cancercare
A national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral, and direct financial assistance.

Cancerpage
A website recommended by AARP.

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COPD (Chronic Obstructive Pulmonary Disease):

Medline database on COPD

American Lung Association on COPD
Treatment Options and Support

Aging Initiative
The website provides a wealth of information about the EPA’s efforts to protect the environmental health of older persons, including Chronic Lung Disease.

American Lung Assoc of California

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Diabetes:

American Diabetes Association

National Institute of Diabetes & Digestive & Kidney Diseases

CDC on Diabetes

Medline Diabetes Database

Veterans Health Administration on Diabetes

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The Fall Prevention:

Temple University Fall Prevention Project
- Check it out! Some things you can do to reduce your risk of falling

- In-Home Safety Check

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Hearing Impairment:

Hearing Impairment Links

Untreated Hearing Loss Linked to Depression, Anxiety, Social Isolation in Seniors from: National Council on Aging, Inc.

Center for Hearing and Deafness/University of Buffalo

American Academy of Audiology

American Tinnitus Association

National Association of the Deaf

Sound Advice on Hearing Aids / Federal Trade Commission Heart Disease

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Heart Disease:

American Heart Association

Mended Hearts
For more than 50 years, Mended Hearts has been offering the gift of hope and encouragement to heart patients, their families and caregivers.

National Coalition for Women with Heart Disease

International Task Force for Prevention of Coronary Heart Disease

Medline information on Heart Disease

UC Irvine Heart Disease Prevention Program

Yale University School of Medicine, Heart Book

Coronary Heart Disease Explained, National Heart, Lung and Blood Institute

Web MD, Heart Disease Center

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Health Care Centers:

Over 60 Health Center, Services include: extensive health and social services, preventive education and screening services. 1860 Alcatraz Ave, Berkeley 94703 (510) 601-6060 M-F 8:30 -12p m. and 1 p.m - 5 p.m.

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Hypertension:

Hypertension/American Heart Association

Hypertension Education Foundation

Medline database info on high blood pressure

An Introduction to Pulmonary Hypertension, Mayo Pulmonary Hypertension Clinic

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Incontinence:

Elder Care "How To" Survival Guide:
Focus: incontinence

Incontinence information from the How To Care/Elder Care Survival Guide

National Association for Continence
Information, books, "Resource Guide" Of products and services. Referrals to local support groups. P.O. Box 8310, Spartanburg, SC 29305 1-800 252-3337 (BLADDER)

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Multiple Sclerosis:

The National Multiple Sclerosis Society
The national MS Society's two San Francisco Bay Area chapters offer a wide range of support and services for persons with MS and their caregivers. Programs include short-term individual counseling, respite grants, caregiver wellness retreats, financial assistance for equipment purchase or repair and equipment lending libraries. The MS Society also publishes free booklets in English and Spanish on a variety of topics. Contact the Northern California Chapter at 800-fightms or 510 268-0572 or visit them on the web. Residsents of Santa Clara County may contact the Silicone Valley Chapter at 408 988-7557.

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Osteoporosis:

National Osteoporosis Foundation

Foundation for Osteoporosis Research and Education

Osteoporosis Online

Osteoporosis and Related Bone Diseases - National Resource Center

Osteoporosis - Women's Health Channel

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Parkinsons:

American Parkinsons Disease Association

My Parkinsons
My Parkinsons is a free resource for people with Parkinson's disease, their healthcare providers, and their caregivers. Patients and caregivers can ask questions of the site specilists and participate in forums, chat rooms and live education events. Health care providers can access healthcare management tools and clinician only forums and chat rooms to share information and experiences.

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Stroke:

National Institute of Neurological Disorders and Stroke

AARP, Ageline
A database to research any illness including stroke

UCLA Stroke Center

Mayo Clinic Web Page on Strokes

Medline information on stroke

Stroke Information Directory

The Brain Attack Coalition
The Brain Attack Coalition is a group of professional, voluntary and governmental entities dedicated to reducing the occurrence, disabilities and death associated with stroke.

Stroke-TIA.org
An educational resource on stroke and tansient ischemic attack (TIA)

Patient Information on strokes from 'docguide'
Medical news and information for patients or friends/parents of patients diagnosed with strokes.

Stroke information on Yahoo

The Internet Stroke Center

On-line stroke support and information

A non-profit, family based organization

The Stroke Center Trials Directory

National Center on Health Statistics/Stroke

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Vision Impairment:

AARP: Shedding some light on Macular Degeneration

National Association for Visually Handicapped

The National Eye Institute, National Institutes of Health

American Council of the Blind

The American Foundation for the Blind

Lighthouse International
Lighthouse International is a leading resource worldwide on vision impairment and vision rehabilitation. Through its pioneering work in vision rehabilitation, services, education, research and advocacy, Lighthouse International enables people of all ages who are blind or partially sighted to lead independent and productive lives.

Visions, Services for the Blind and Visually Impaired

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National Library Service for the Blind and Physically Handicapped through a national network of cooperating libraries, NLS administers a free library program of Braille and audio materials circulated to eligible borrowers in the US by postage-free mail.

Recording for the Blind and Dyslexic

National Federation of the Blind
Voice of the Nation's Blind

Resources for Rehabilitation

Providing free Christian publications and programs for persons with visual impairments

www.jewishBraille.org

The Jewish Guild for the Blind
The Jewish Guild for the Blind is one of the countrys foremost vision care agencies.

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Housing

Does your home meet your needs or your elder friend/relatives/partners needs? This site is the AARP designed list on 'universal design"
According to a recent AARP housing survey, 83 percent of older Americans want to stay in their current homes for the rest of their lives. They find their homes comfortable and convenient and feel secure and independent here. However, as people age, the design of their homes play an increasingly important role in how they manage their daily activities. Homes that were perfectly convenient at age 55 can cause problems in later years, as diminishing physical abilities make daily routines more difficult without some design modifications.

What You Should Know : Take a good look at your home
Simple alterations can prevent one-third of all accidents. These changes not only increase your safety but enhance your comfort and increase the likelihood of your remaining independent in your home and community. So it is important to look at your home with a critical eye. Use the checklist that follows to identify problem areas in each room. note any ideas you have for improvement.

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Information and Referral

National

Elder Care Locator
(800) 677-1116
TDD/TTY: 711
Elder Care Locator is a free nationwide assistance service (and a model program) to help older persons and their caregivers locate support resources or give information about long-term care planning. You may call this number with the city, state, zip code of a town an elder lives in and they will connect you with the Aging Information and Referral Services Agency for that area. This is an excellent resource for Long-Distance Caregivers. Eldercare Locator links caregivers with state and local resources that enable older persons to remain independent in their own homes.

State

California Department of Aging
Website provides resource information on services and programs available to seniors and adults with disabilities throughout California.

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Respite

The Arch National Respite Locator
This locator service helps parents, caregivers and professionals find respite services in their state and local area. The services is also useful when a family travels or must move to another state.

800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
Ph: (800) 604-9655
Fax: (919) 490-4905

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Legal/Financial/Advocacy

BenefitsCheckUp
The National Council on aging created this service that identifies federal and state assistance programs for older Americans. After entering simple information, such as age, income and zip code, BenefitsCheckup explains which benefit programs the inquirer may be eligible for and how to apply for them. The whole process takes less than 15 minutes and is completely confidential; as such, it doesn't require the user's name, address, phone number, social security number, or other information that could be used to identify them

Estate planning information.
Estate, retirement and long-term care planning, Medicare/MediCal and more.

HICAP (Health Insurance Counseling & Advocacy Program) Statewide toll free number: 1-800-434-0222 Alameda County (510) 839-0393 Contra Costa: West County: (510) 374-3943; Central County: (925) 313-1720

Medi-Cal

Alameda County Services Agency, Oakland (510) 383-8523
Fremont (510) 795-2428
Livermore, Tri Cities 1800-952-8627
Beneficiary Information; "Your Medi-care Handbook" 1997 ($2.00)

National Academy of Elder Law Attorneys, Inc
1604 N. Country Club Road, Tucson, AZ 85716
(520) 881-4005
Find an Elder Law Attorney in your area, Free "Questions and Answers When Looking for an Elder Law Attorney."

Medicare Basics and Overview
Call Social Security Administration (SSA) at 1 800-772-1213. You can also call the U.S. Centers for Medicare and Medicaid Services (CMS) at 1 800 MEDICARE (1 800-633-4227). The SMS website features a brochure entitled Medicare Basics.

NSCLC
Advocates nationwide on behalf of low-income elderly individuals and persons with disabilities. It provides litigation assistance, research and consulting support, national policy representation, training and manuals and periodicals.

US Government site for people receiving Medicare

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Long Distance Caregiving

"How to Care" / Elder Care Survival Guide

National Association of Professional Geriatric Care Managers
How a geriatric case manager can be helpful to you; how to find a local geriatric case manager (database). Very valuable resource for long distance caregivers.

Long Distance Caregiving: Family Caregiver Alliance

Long Distance Caregiving, Elder Care Locator (Resource finder)

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Mental Health

National Institute of Mental Health (Crisis in Geriatric Mental Health)

American Association for Geriatric Psychiatry

American Psychological Association

National Alliance for the Mentally Ill

American Psychiatric Association

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Nursing Homes

California Advocates for Nursing Home Reform (CANHR)
This is an excellent state of the art web site with valuable data related to selecting a nursing home in the area of your choosing. Click on "Nursing Home Guide" put in the city and this site will give you a list of nursing homes, the number of beds, information about what financing is accepted, what health issues are accepted, and shows the facilities record including violations it has been cited for.

California Advocates for Nursing Home Reform (CANHR's Guide)
CANHR's guide has in-depth information on all 1400+ nursing homes in California**, including interactive searches, comparisons, and details on violations, staffing and services. Go to "Nursing Home Guide."

Nursing Home Compare
("The Official US Gov Site for People with Medicare")

The primary purpose of this tool is to provide detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country.

Dementia Care/Special Conditions (CANHR fact sheet)

A guide to preventing abuse in Long Term Care Facilities (CANHR fact sheet)

Suggest clothes for a nursing home

How to file a complaint against a nursing home (A CANHR fact sheet)

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Public Benefit Programs

BenefitsCheckUp
The National Council on aging created this service that identifys federal and state assistance programs for older Americans. After entering simple information, such as age, income and zip code, BenefitsCheckUp explains what benefit programs the inquirer may be eligible for and how to apply for them. The whole process takesless than 15 minutes and is completely confidential; as such, it doesn't require the user's name, address, phone number, social security number, or other information that could be used to identify them.

Information about applying for Medicare
Call Social Security Administration (SSA) at 1 800-772-1213. You can also call the U.S. Centers for Medicare and Medicaid Services (CMS) at 1 800 MEDICARE (1 800-633-4227). The SMS website features a brochure entitled Medicare Basics.

Rebuilding Together (Formerly known as Christmas in April)
a national nonprofit organization whose mission is to preserve and revitalize houses and communities, ensuring that low income seniors and persons with disabilities remain safe and independent. Volunteers and skilled tradespeople perform such tasks as home modification, painting, cleaning, carpentry, plumbing and electric work. Rebuilding Together has programs throughout the Bay Area.

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(510) 642-7883 wnishikawa@uhs.berkeley.edu

Disclaimer: Web links are for informational purposes only and do not constitute endorsement by the University of California or the Work/Life Office